Industry and Patients Involved: Collaboration of HollandBIO and admedicum
The online Patient Engagement Guide was launched in May 2018 and received very positive feedback both from Europe and the US. This updated version 3.0 now from June 2021 includes :
- A chapter about the importance of patient engagement at FDA, EMA and HTA level
- Case studies related to Patient Support Programs and patient driven innovation in medical aids
- Tools like the "Do's and Don'ts" list regarding collaboration with patients
To offer companies a helping hand with patient engagement, HollandBIO and admedicum teamed up to develop the PEG in late 2016. The idea was born by Wouter Strijker, at the time with HollandBIO, and Philipp von Gallwitz, Co-Founder of admedicum® Business for Patients, at the Orphan Summit Conference in Amsterdam.
The idea was tested and further developed in a workshop with HollandBIO members in The Hague in April 2017. During a webinar in November a demo version was presented to interested members and patient representatives. Feedback from these events and from numerous individual exchanges with patient and industry contributors has been invaluable! An overview of contributors and partners can be found in the section “Thanks to Contributors”.
HollandBIO is the rapidly-growing industry association that represents the interests of biotech companies in The Netherlands. It's members reflect the biotech sector: from start-ups and SMEs to large companies, active in healthcare, agri-food or biobased economy. HollandBIO actively looks after the sector’s interests and supports a strong network. By tackling the obstacles that hinder the biotech sector's ambitions, HollandBIO ensures that biotech innovations can be made available as quickly and widely as possible.
admedicum® Business for Patients brings together the services of healthcare companies and the needs of patients. We strive for credibility, genuine cooperation and a sustainable benefit for all. We are guided by the common good and always ensure transparency, independence of all partners and respect for human dignity. We are specialists in patient engagement and patient access in research, development and access to treatment, medical devices and services. We network the knowledge and skills of patients, patient organizations and health care companies in Europe. The team of admedicum Business for Patients combines a deep understanding of both the particularities of patient groups and industry from years of practical experience. Our special expertise is to merge patient benefits and corporate success in all projects and to achieve measurable results.
We very much hope that this guide can contribute to encourage companies to seek the insights from those who are suffering the diseases we try to tackle.
On behalf of the teams from HollandBIO and admedicum® Business for Patients
Managing Director HollandBIO
Philipp von Gallwitz and Dr. Andreas Reimann
Co-Founders and Managing Partners admedicum®Business for Patients