Thanks to Contributors

This guide has been enriched by  input from patients, patient representatives and professionals of the pharmaceutical and medtech industry, who gave critical feedback on the content and structure of the Patient Engagement Guide. By sharing their valuable expertise and personal experiences with patient-industry-collaborations, they helped making the Patient Engagement Guide a practice-oriented guide with real life scenarios.

Christa van Kan, Chief Clinical Officer, PSR Orphan Experts

Claire Leyten, former director Patient Advocacy & Public Affairs Europe Raptor Pharmaceuticals

Conny Bressers, Marketing Manager Benelux Vertex Pharmaceuticals BV

Daniel Leonard, Director of Global Patient Advocacy uniQure

dr. Eric Vermeulen, VSOP (Dutch Association for Rare and Genetic Diseases) and AMC

Hans Schikan

Johan Beun,  coördinator of the Dutch organisation BijnierNET 

Marco de Boer, Chief Executive Officer NTrans Technologies BV

Marleen Kaatee, President of PSC Patients Europe

Maryze Schoneveld van der Linde, Founder of Patient Centred Solutions and Strategic Partner of admedicum

Roger Legtenberg, Chief Executive Officer, PSR Orphan Experts

Sheila Khawaja, Vice-Chair of the World Alliance of Pituitary Organizations (WAPO)

Walter Atzori, Director Alliance Development EMEA at Alexion Pharmaceuticals, Inc.

…and some others from industry, who preferred not to be mentioned - mostly due to internal process requirements (yes, it is a complex business…). Thanks to all!

We would like to express our sincere thanks to the team members of HollandBIO and admedicum^®for their incredible dedication, resilience and tireless passion to make this online tool come to life! Without the great work of Laura Harzheim, admedicum, and Britt van de Ven, HollandBIO, this guide would simply not exist today. Thank you both so much! Also thanks to Wieteke Wouters and Timen van Haaster, HollandBIO, for their diligent cross-reading over and over again!

We are very grateful for the contributions of Nancy Meyerson-Hess and Rachel Jones, Associated Partners of admedicum® Business for Patients, and Dr. Lode Dewulf, partner of admedicum for this project as the co-founder and managing partner of Corvalus, who have thrown in their combined experience and competencies into several case studies and other content. Thank you so much for your guidance, thoughtful challenge and significant time spent on this!

Last but not least, we’d like to thank Wouter Strijker, Business Developer at Mimetas, for co-inspiring and initiating the collaboration on behalf of HollandBIO in 2016 and early 2017. Wouter, here it is at last and it’s just the start!

Annemiek Verkamman

Managing Director HollandBIO

Philipp von Gallwitz and Dr. Andreas Reimann

Co-Founders and Managing Partners admedicum^® Business for Patients