The Importance of Patient Engagement in the Industry
Effective patient engagement in the industry matters due to a variety of reasons and developments:
Patients have a unique expertise regarding their disease and treatment: only they know what they really experience day by day
Patients' expertise is increasingly recognized by health care practitioners, regulatory and health technology assessment (HTA) authorities as very valuable and complementary to science and medical expertise
Patient expertise can create significant value for the industry
Patients continuously create and publish data. They talk about and exchange their data through social media and digital tools. Stakeholders can use this know-how for better medical solutions
Regulatory authorities, HTA bodies, patients and their health care providers will increasingly demand data on patient benefit that can only be generated in collaboration with patients (patient reported outcomes, real world evidence, etc.)
Partnering With Patients in the Development and Lifecycle of Medicines, THERAPEUTIC INNOVATION & REGULATORY SCIENCE, 2015 Nov; 49(6): 929–939
Defining patient centricity with patients for patients and caregivers: a collaborative endeavor, BMJ Innovations, March 24, 2017
The Intersection of Pharma and Tech: Digital Pharma ; Pharma Elsevier, 19.Oct. 2016
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The Patient Engagement Guidebook
Effective patient engagement!
This is a practical guide for companies in the pharmaceutical and biotechnology industry who want to start effectively engaging patients or want to improve their patient engagement.
Researchers, Clinical Developers, Patient Affairs Managers, Medical Affairs, R&D Project Leads, Regulatory Affairs, Compliance, Heads of Business Units, Strategy & Corporate Development, CSR, Market Access, Marketing, Governmental Affairs and Communications, Business Development and many more...!
Practical day-to-day issues!
The guide is based on case studies, analyses of these and finally recommendations. What can you do and which tools and information can you work with to cope with situations equal or similar to the case study.
Easy guide to tools, checklists and literature!
The guide refers users quickly to publicly available materials relevant for the specific situation without the need of greater searching.
Updates for continuous improvement!
Feedback by users and continuous work by the providers will provide for additional case studies, regular updates and extensions.